The support network for patients and their families

Statistics from 1999 show an alarming development of support services for patients with Alzheimer's and their families. Currently in our country most of the care falls on the families of the sick, often with devastating consequences on psycho-physical.
When a family discovers that it is a member of Alzheimer patient faces a critical moment that can sometimes last for years, and that requires an internal restructuring difficult and complex. They must also assist the helpless tragedy.
The offer that is not there.

Censis from the 1999 show in terms of forms of economic support, only 34.1% of family members of patients with Alzheimer receive the accompanying benefits, an income to a maximum of 67.7% between the most serious patients. The new generation of drugs that could alleviate the cognitive and functional, are almost always a total load of the family;
In terms of access and use of services, the data describing a part of the disappointing and worrying.
Very few patients are attending day-care centers (7.6%) and for the majority of those who use it is a private service fee with a monthly fee rather high.
Family members who have received a care services are integrated just 6.1%, given that only increases with the worsening of the disease.
The shelter in health care facilities (hospitals) on the National Health System, is a phenomenon linked mainly the aggravation of the situation or in carrying out diagnostic procedures related to the start of the appearance of symptoms. Censis The survey tells us that in 1999 he turned to hospitals 19.8% of people with Alzheimer's not serious and 30.8% of patients with a worsening of the situation.

The shelter in social welfare facilities (homes) is a phenomenon quantitatively insignificant. At the base of the shelter are mostly needs temporary relief from duties of family care (63.6% of cases) or behavioral disorders of the sick who require large family management problems (22.7%)
As for the services of non-health care for more than 30% of respondents using employees and family members pay only 13.85% received care at the intervention of social assistance.

Attention on the relationship between family and services, should be given to the issue. The survey shows that 78% of respondents felt caregiver at all or almost all of the insufficient information available about the disease and the situation is even worse with regard to possible actions of which it is informed only 6.6% of sample.
Compared to the sources revealed that the medical practitioner is the most cited source of information (48%) which followed the associations of family members and patients, and the media.
Doctors in general have been a source of information for only 7.2% of respondents.

Faced with this situation, the relationship between the family and the institutional network of services appears to be deceptive if not disarming when you consider that the most useful services that tend to lack the most (by reference to the Censis and data already mentioned in Chapter three).
The inadequate response of the weight that exacerbates the disease requires the patient and his family and, in fact, end up denying that those taking early action, even at the moment, would improve the conditions of the patient, delaying the time ' aggravation of the situation and the welfare of improving the quality of life of patients and their family, to save money and social issues.